Feel Like I'm Living In A Bubble

Hello, and thnx to who reads my blog. 

Again I'm on my way to being ill. It feels like a chest infection coming again, I'm not taking any meds until I have too, I've got my rescue pack already. 

My immune system must be shot to pieces for me to be ill all the time. I'll be glad when I get to talk to a consultant for Fabry Disease 9/06/22 at The Royal Free Hospital, its a telephone consultation. I've already spoken to a Dr from The Royal Free Hospital a few weeks back, I told him what is happening to me and he understood my symptoms, the horrific pains in my body, when the weather changes i suffer heat and cold intolerance,  from hot to cold or cold to hot, like we had last week and week before and and I was laid up in bed and what with the continuing chest infections and how they are affecting me. I'm so bloody fed up with being ill... fucking illnesses! 

I know I've mentioned all this in previous posts, but I need to write this all down so I can reflect on later. 

I do put my continuous chest infections down to Fabry Disease. 

Its been about one week ago since I had my last antibiotic. I seem to get a few day freedom before it starts all over again. 

I can't make plans incase I'm ill. 

I've put off a couple of holidays because I don't know if I'm going to be ill or not...Grr! Its a bloody nightmare. I feel like I'm living in a bubble.

My friend wants me to go to the Isle Of Wight with her, but I'm worried because the hospital is on the mainland Southampton,  plus i think its an hour on the ferry, I'm worried because I could be in serious trouble and not get the help I need, I think I'll have to tell her no I'm not going even though I would love to go with her. It sickens me. My friend said I always seem to be negative, I'm not really, I'm just being cautious and looking at the pros and cons of the situation. I know my own body.

I think I should stay close to home, maybe Southend On Sea, maybe! At least there's a hospital not too far away and not too far to get home either.

People don't understand what I go through and how I'm affected, I have to look at the pros and cons of everything where my health is concerned.

Sandra